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The deal would’ve stayed buried without investigative journalists, and it still hasn’t been reverted.
Thanks for sharing, have my upvote!
That is so much more wild than i even imagined after reading the title. This could absolutely be abused to predict any lifelong genetic illnesses you might have and completely fuck your health insurance chances / rates before you even leave the hospital as a newborn. It could be used for good, but we all know that is not what healthcare companies and capitalism care about.
I guess GATTACA never got dubbed into Greek, huh?
It seems horrible but hopefully their local DPA made sure that the data shared together with the samples is absolutely and irremediably anonymised ? So unless relatives’s DNA is available there should be no way to link back the tests data subjects with the samples, preventing the worse abuses? Because in the end there’s a consent exception for data used for scientific research IIRC so it’s not like it was not anticipated by gdpr.
Failing that it’s a major dick move and a sad indication of failure of the local DPA…
I still think I should be allowed to copyright my DNA and Sue the pants off of any companies that abuse it. If stupid Monsanto can copyright the stupid potatoes they used to make their stupid potato chips I should be able to do it too.