this post was submitted on 14 Jun 2025
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Television

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[–] towerful@programming.dev 17 points 20 hours ago (1 children)

People sharing their experience with a medical condition is huge. Especially if they have the reach to inform thousands.
Everyone has the right to privacy, and that's fine if that's the path they take. But sharing their story might get a few people to reconsider symptoms and seek/get help.

[–] FundMECFSResearch@lemmy.blahaj.zone 16 points 19 hours ago (1 children)

Except when they push harmful narratives. So many celebrities pushing alt med bullshit. Or relying strongly on metaphors like “war” to talk about cancer which is not only inaccurate but stigmatising to those who die from cancer as it implies they “didn’t fight hard enough”, didn’t have the “spirit” or “determination” or whetever.

[–] towerful@programming.dev 5 points 19 hours ago

Yup, fair point.
In my opinion, there is a difference between sharing your experience and pushing a narrative.
Ideally, viewers/readers would consider the perspective and draw their own conclusions instead of wholey adopting the celebrities view point.