Sillyglow

joined 5 days ago
[–] Sillyglow@lemmy.ca 1 points 1 day ago* (last edited 1 day ago)

The experience shouldn't offend the data. The data comes from the experience. If you keep discounting occurances it will seem rare and unusual. that's perpetuating a fallacy.

A close friend of mine has a son who hadn't had seizures in a few years and they thought his seizures were being managed and that they found the right medication and treatment. Then suddenly he had a grand mal but luckily while they were out someone else was around. Took them all by surprise. he had a cardiac arrest and everything.

This does count.

It becomes less rare when you stop belittling experiences about it. It should absolutely be taken more seriously.

[–] Sillyglow@lemmy.ca 4 points 3 days ago* (last edited 3 days ago) (1 children)

What if you’re wrong?

The meds aren’t always an insurance. she could be between meds if in case she’s had recent episodes and needing to change a perscription. This has happened to multiple people i know who are dealing with seizures as their lifestyle.

I’m sure the family had gotten the autopsy to be going the length of posting it as the official cause.

[–] Sillyglow@lemmy.ca 6 points 3 days ago (6 children)

Dying from epilepsy is only rare in circumstance that a person isn’t close by. Chances of Dying from epilepsy is quite scarey in that there is a possibility on every single epileptic seizure that a person could die.

People with epilepsy have a chance of dying if they are awake and no one is around fast enough to do anything.

Almost lost a neighbour this way.

if they are asleep there is less a chance someone might come by. Because everyone else is asleep and unless someone is in bed with you they wouldn’t know to wake up and do something to help.